ExecutiveOrdersEO
Proc 10068ProclamationTrump 45 · RCeremonial

Proclamation 10068

National Sickle Cell Disease Awareness Month, 2020

This proclamation designates September 2020 as National Sickle Cell Disease Awareness Month. It highlights ongoing administration efforts in SCD research, treatment, and care—including the STAMP program, FDA-approved drugs, and the NIH Cure Sickle Cell Initiative—while calling on Americans to observe the month with awareness activities. The document contains no binding policy directives, funding allocations, or agency mandates.

Federal Register Open PDF 85 FR 55167

Key directives

  • Proclaim September 2020 as National Sickle Cell Disease Awareness Month
  • Call upon all Americans to observe this month with appropriate programs and activities

Timeline

Immediate

  • September 2020 designated as National Sickle Cell Disease Awareness Month

Near term (90d)

—

Long term

  • Goal of extending lives of Americans with SCD by 10 years
  • Goal of finding cure by 2029

Risks & tensions

  • Document describes past and ongoing initiatives but creates no new obligations; goals (cure by 2029, extend lives by 10 years) are aspirational without enforcement mechanism
  • Disparity in care access noted (only 1 in 4 patients receive needed care) but not addressed with new directive
Proclamation 10068: National Sickle Cell Disease Awareness Month, 2020 · Executive Orders